映画 · 56分

RARE

Q: 『RARE』の上映時間は？

『RARE』の上映時間は56分です。

▶ 配信先

ドキュメンタリー

『RARE』は—年の映画です（ドキュメンタリー）。『RARE』の上映時間は56分です。現在、日本で『RARE』を視聴できる正規の配信先は見つかっていません。後日確認するか、国を変更してください。

『RARE』はどこで見られますか

📍 日本

日本では現在、正規の配信先が見つかっていません。メニューから別の国を選んでください。

配信データはJustWatchより提供されています。

あらすじ

RARE follows an extraordinary mother in a race against time to find a treatment for her daughter's rare genetic disease. When Donna Appell learned that her infant daughter Ashley had an extremely rare genetic disease that would kill her in thirty years, she set out to track down every person in the world with Hermansky-Pudlak Syndrome (HPS). Realizing that no one was going to help cure "just one child," Donna forms an advocacy group and travels throughout the US and Puerto Rico to gather as many patients as possible who suffer from HPS, which includes albinism, blindness, a bleeding disorder and often a fatal pulmonary fibrosis. By the time Ashley turns twenty, Donna, under insurmountable odds, has achieved something incredible: the advocacy group she started is now in the hundreds and the NIH has agreed to start a clinical trial.