《RARE》是一部—年的电影（纪录）。 《RARE》片长56分钟。 目前在台湾暂未找到《RARE》的正版观看渠道。请稍后再查看或切换地区。
《RARE》在哪里可以看
📍 台湾暂未找到台湾的正版观看渠道。可在菜单中切换其他地区。
流媒体数据由JustWatch提供。
剧情简介
RARE follows an extraordinary mother in a race against time to find a treatment for her daughter's rare genetic disease. When Donna Appell learned that her infant daughter Ashley had an extremely rare genetic disease that would kill her in thirty years, she set out to track down every person in the world with Hermansky-Pudlak Syndrome (HPS). Realizing that no one was going to help cure "just one child," Donna forms an advocacy group and travels throughout the US and Puerto Rico to gather as many patients as possible who suffer from HPS, which includes albinism, blindness, a bleeding disorder and often a fatal pulmonary fibrosis. By the time Ashley turns twenty, Donna, under insurmountable odds, has achieved something incredible: the advocacy group she started is now in the hundreds and the NIH has agreed to start a clinical trial.
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常见问题
《RARE》在哪里可以看？
目前在台湾暂未找到《RARE》的正版观看渠道。请稍后再查看或切换地区。
《RARE》片长多少？
《RARE》片长56分钟。
喜欢《RARE》还可以看什么？
如果你喜欢《RARE》，可以试试向光而行、麦昆、有毒爱情故事和约翰·福特执导。
